The association’s strategy has been drawn up by the board of the association based on reflections by the members.
Core activities
- We provide peer support for people with bleeding disorders and their close ones.
- We actively follow developments in the treatment of bleeding disorders in Finland and worldwide and share reliable information about bleeding disorders to our members.
- We aim to raise the awareness and understanding of bleeding disorders at a societal level.
- We support efforts to bring new medicines and treatments to market, and aim to influence public decision-making to ensure the best possible care for bleeding disorders.
Our values
People first
We exist for our members. We keep our members and the importance of providing peer support at the heart of what we do. We work to ensure that our activities are accessible to all, regardless of age, gender, health or financial situation.
Reliable
We check the accuracy of all the information we share to ensure that there is access to quality information on bleeding disorders for all.
Renewing
We are constantly renewing to keep up to date and meet the needs of our members as best as possible.
Our vision
Finnish Bleeding Disorders Association is well known in Finland. Every patient and family member with bleeding disorders knows we exist.
We are contributing to the visibility of rare diseases in our society.
Together with healthcare professionals, we support the everyday well-being of patients and their families.